In waiting

I can't stand the waiting game. We are now at a week since we started tapering Karsen's prednisone. So far so good. Still no seizures, though we were told if they come back it will be the two to three week mark after the taper starts. So, we wait. Just like we have with everything else. You'd think by going through everything with Karsen I would be a more patient person.... ha! Not so much! I'm still so impatient. Karsen is doing much better at nights. He sleep through the night two nights in a row. I didn't expect this to be a pattern, which was a good thing, because last night he got up twice. :-/ His mood seems a lot better during the day. He has a little more drive to play with his toys and actually ate a rice rusk on his own this morning. Getting him to feed himself finger foods has been a chore. He still doesn't have the pincher grasp down, not sure when he'll get that. We have an appointment with the physiatrist tomorrow. It's our first one. To my understanding they are just going to make sure Karsen is getting all the services needed to help him perform to his fullest. We'll see how this goes. The one thing that's super nice, it's 2.5 miles away from my house. Closest appointment yet! Let's hope it's an easy appointment.