Our journey through life with hemiplegic cerebral palsy and infantile spasms

Sunday, October 25, 2015

Bit of change

I have great news, we are now in a financial situation where I can stay home with the boys. This will be the first full week, post vacation, that I will get to enjoy every moment of being home with my boys are really working on things with Karsen. I'm now able to shift my focus on to what is more important at the moment. I love doing hair but for now, my place is at home with my boys. To be honest I'm a little scared. I'm a social butterfly and a people person, I fear Bing home with the boys full time, might put me in a funk here or there. I'm going to be making a conscious effort on planning stuff with my friends as well.
Other than me staying home, not much ash changed. We just got back from Montana and I fear I left half my heart there. It's so beautiful there. The boys played outside 90% of the time. The weather was perfect and there was a full crew of boys (6 kids, two adults). I'm making it a point to include that slower pace life that we temporarily lived out there for a few short days. I had such joy in slowing down to watch my boys play outside, to ease drop and hear Karter's conversations with out him knowing I was listening, and enjoying the beauty of our world. 
I came home really feeling like we need to look for a new home. I love our house, but we have out grown it, and Karsen has very little flat accessible areas he can play. Kuper and I are thinking in the spring we will list. Finding the new house is going to be the real challenge. We want a bigger house than we are in now, which won't be hard since our house is tiny, but single story (no stairs or weird step ups), a detached garage (Kuper desperately needs a detached one), flat usable property, preferably more than two or three acres. That may not seem like much but you add the need for flat usable property, you bumped up the cost by $100k maybe more. Praying the right house will come in the right timing. 
We are STILL waiting on a behavioral assessment for Karsen. It's been since April when our referral went through to Alta. I'm beyond irritated sinc we should have never been discharged in the first place. Tomorrow is a new day and a Monday, which means I get to do what I do best, squeak away.