Who doesn't get frustrated with the medical system?! Today, I have flat out had it. I may be really good at being a squeaky wheel, but that doesn't mean I like to do it all the time.
We have been trying since April, APRIL people, to get Karsen a behavioral assessment through alta regional. There is no one in our area that does them that our insurance will pay for outside of alta. So, we've been going through the process of getting him back in the system. Come to find out, he shouldn't have been discharged in the first place, this would have only take a few short weeks if we didn't. But whatever, what's done is done... I'm not bitter or anything..... I heard from the alta intake worker mid September to get things going so Karsen could receive his assessment and also evaluate him to get him back into the system. Since then, I have called her three times, as well as emailing her a handful of times, to see where we were at in the process. Basically to be a squeaky wheel. I heard nothing back. Finally today I got an email back from her stating she had sent out papers for me to sign and return on September 15th. Weird... because I NEVER GOT THEM! (I hope you guys can hear the irritation/sarcasm in my words). She finally emailed me the papers and asked me to sign them and email them back to her, I have no clue why she didn't do that in the first place. All of these months we could have had help by now, we could have gotten Karsen a behavioral specialist. I've been begging for one and complaining to anyone that will listen about how hard his behavior has been and how we need help. I'm just mad. So mad you guys. I'm mad for the moms out there, going through the same behavioral stuff and not getting any help, feeling on the verge of a break down. I'm not exaggerating. I have a great support system, they are the reason I haven't completely lost my mind, haven't checked out and decided I didn't want to do this anymore. What are those parents out there, with out any support system, suppose to do while you drag your feet and wait for us to squeak?! Why on earth does it take someone three phones calls, over 4 emails just to find out the paper work process hasn't even started. When a parent comes into a medical professionals office and says "I need help, my childs behavior has gotten really bad. It's put a ton of stress on me as well as my family." since when do you think it would be a good idea to put them through months long of a process to even receive any help?! I am more than happy to be Karsen's advocate, make sure he gets everything he needs, as well as done in a timely matter. But for once, When I say I need help, I NEED HELP PEOPLE! Praying this process will pick up soon and we can get the ball rolling faster.
We've had a lot going on lately. I'm meeting with Karsen's speech therapist on Monday to request more speech. I know we will have to do a formal IEP at some point, we are just meeting to go over the options. In two weeks, I'm meeting with our case worker to go see what options are available for Karsen next year, for school that is. I have no clue what other options there are besides TK or Kinder (with an aide of course.).
Karsen has started to take off with his device. He asks frequently to see Aubrey and constantly says "I want to tickle." We've seen a slight improvement on his speech as well. He's starting to say EEE and AHH and MMM on command. Oh is really hard for him. It's a slow, long road for him, hence why I am requesting more speech.
We've got lots of things to push forward and lots to keep me busy. Life is good, I'm blessed to be home with my boys and able to have the time to devote to this stuff. God is good y'all.
