Our journey through life with hemiplegic cerebral palsy and infantile spasms

Friday, September 6, 2013

An easy day

Fridays are my day alone with Karsen until Kartergets home from preschool. It's weird being out with just one child, it feels a lot like missing a limb. This morning I decided to join a couple of my friends in a boot camp class right after school drop off. It worked out perfectly, I really had no excuse to not go. I was already down the hill, had no therapy, nothing looming over my head. I of course forgot the stroller so Karsen went in the ergo. Lunges, planks, weights all with him on my back and he was quite content. It was the first time in a long time Karsen seemed happy 99% of the time, for a split second he thought I was leaving him, once he realized I wasn't, all was ok. When we hoped in the car he was all smiles, super happy, making funny faces at me in the mirror, chatting, it was a really nice morning. It was the first time in a long time I didn't feel over whelmed by his pain, his frustration, the first time ever I forgot for a split second he was special needs. It's just a glimpse that more of these days will come, I know they will.It makes my heart happy to see my little man be lit up with a smile on his face all day.

On another topic, we are waiting for a phone call from another doctor to schedule the Botox. From one referral to the next. We got referred out to a guy who specializes in Botox injections in salivary glands. I will gladly wait for the paper work to go through. We already heard from our insurance that they approved it (insert happy dance here). So now we are just waiting for their schedule to clear up. 

Karsen is really doing great. Starting to walk more and more confidently every day. He's been able to master going up stairs with a hand rail by himself. We are seeing more and more signs every day. Still not any defined words, but I have faith he will.

Karsen trying to stick his tongue out, silly boy.