We have hit one week, today, of zero seizures! We have a few more weeks of being on this drug and then we have to tapper him off. The real questions is will they stay away when we tapper him off? We hope and pray that is what will happen. Karsen is moving forward and blowing us away. He's so strong. He's baring weight for longer periods of time each day. We just need to work on getting out of sitting the safe way and then I wont feel like I need to set up a pillow fort behind him. We got bumped up on his physical therapy. He has a physical therapists, an occupational therapist, and an early childhood education specialist. Maria, his physical therapists, bumped him up to weekly. We are in the process of getting his OT to come weekly as well, and his early childhood education specialist will stay every other (hoping we can bump that up soon too). I'm so grateful they come to our house. That would be a lot of driving.
Karsen's benefit is this Sunday. I can't believe it's almost here. My parents, and so many others have been working their butts off putting this together. We are so blessed to have so many selfless people in our lives.
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