Tomorrow morning, Kuper and I head out bright and early for our long day of appointments for Karsen. I'm so thankful my hubby is so willing to take the time off work to go to all of our specialist appointments since they are such a far drive. Thanks to my sister and my mom figuring out the day of swapping, between the two of them, they will be watching Karter so we wont have to drag him to a bunch of appointments that he'll just hate. Even though the road to get here was quite a fight and really ugly, I am so happy with the many gifted doctors working with us. I've been emailing Karsen's neurologist back and forth about his seizure medicine and what to do next since it isn't working. After many emails, she told me since we were coming down for Karsen's appointment with the urologist she was going to squeeze us in for the same day, just a few hours after. For those of you out there who have a pediatric neurologist for your child, you know how difficult it is to get into them. For those of you that don't know, the average pediatric neurologist had a 7-9 month wait when we were first trying to get in, and that was even when Karsen's case was marked urgent. Our neurologist is amazing!!! I'm so happy we ended up at Stanford. The drive is very worth it.
First thing tomorrow, we drop Karter off at my sisters. Karter is so excited he gets to spend the day with Auntie and best of all make cupcakes... those so better not enter my house... lol ;-) Then off we go for our three hour plus drive down to Stanford Children's hospital. First stop: the see the pediatric urologist. We've been told to expect an hour and a half for the appointment. I feel so lucky we've found doctors that don't rush us out the door. Next stop; pediatric neurologist, in hopes to figure out a plan of action to stop Karsen's seizures. We are now at our max dosage and they are still around 6-8 times a day. And then the final stop; down to the lab to get blood work done. When Karsen suffered the stroke, it was either caused by a blood clot from the placenta or from his own body. So, the blood work show us if we need to put him on blood thinners or not, to prevent any more strokes. Then head home! Is it the weekend yet?.....
Please continue to keep Karsen in your prayers. He's been so strong and continues to surprise us all by still pushing forward in his development even though he's still having seizures (his type of seizures have been known to regress development) He's my little fighter!
So, say a little prayer for safe travels tomorrow and no traffic (ha that'll be the day)
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