Our journey through life with hemiplegic cerebral palsy and infantile spasms

Wednesday, May 9, 2012

Somethings got to give

My poor baby just can't catch a break

I took Karsen to his 9 month check up today. Going to these appointments are a piece of cake compared to his neuro appointments. I went in thinking "This will be a breeze", an hour later I left feeling broken, once again. Called my husband first thing, told him what happened. Going through the regular questions of what your baby is doing clearly doesn't apply with Karsen. His doctor asked what medication he was on, his update on everything and began to check him over. He was in the 80th percentile for height (my tall boys) and 42nd for weight. His head was starting to shift to a normal head shape and not so misshapen. When he took off his diaper and started to examine everything, he took a serious amount of time and wasn't saying anything at first. He then asked me if Karsen's testicles are always up. I told him I didn't pay much attention to it, right then I felt like an awful mother. How could I miss something like this?! But now, looking back, I realize they always have been that way. I just assumed he was always cold, but today he was definitely not cold considering how hot it is outside. Thank God for doctors knowing to look at the small stuff that we skip over thinking nothing of. I have no clue what those things are suppose to do. Apparently Karsen has undescended testicles. (sorry Karsen if you're reading this at 16 years old saying "Moooom!") He told us considering everything going on he wanted to send us to a pediatric urologist right away. Ugh! I couldn't help but remember the ugly process it was to get Karsen in with the neurologist. All the non stop phone calls, dealing with insurance, calling the referral specialist, basically being a true form squeaky wheel. Well, I guess here we go again! Now, here I am, googling once again on what this all means. In about an hour I will be hitting the phones and hounding the insurance. Us moms will move mountains for our kids, right? Wish me luck and say a pray for my little fighter please. 

1 comment:

  1. One of my best friend's from high school has a daughter that has cerebral palsy and I remember her frustration when it came to getting new doctors... all the phone calls, so many circles to run in and hoops to jump through. Hang in there, remain patient yet persistent. Like you said, you'll move mountains for him and he will thank you for it later!

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