Our journey through life with hemiplegic cerebral palsy and infantile spasms

Saturday, January 26, 2013

This should be interesting

Karsen's appointment on Thursday seemed to take forever. It didn't help that the assistant put us in the wrong room, so we sat there for 45 mins. Waiting for the doctor show up while she didn't even know we are there. So, when we finally saw the doctor, Karsen was spent and ready to leave. I quickly remembered how much I hate the eye appointments. They had to pin him up against me while giving him eye drops and then did that all over again to examine his eyes. Kid was freaking out and I was almost in tears.
After much struggling, we were told Karsen's vision is good but he has a strabismus in both eyes now. That indicates its a neurological cause. We weren't sure if he had it by chance before but now that it's in both eyes it's clear it's not by chance. The eye patching wasn't working so we are moving in to glasses. These glasses will help him relax the muscles that are already working properly so the weaker muscles can get stronger.
So, yesterday we went and got him sized and picked out the color and everything. They are pretty cute, and he'll even match Kuper. Keeping glasses on him will be another story. He needs to be wearing them as often as possible. This kid won't even keep on a beanie. We shall see, it will be interesting indeed. His glasses should be here this week. Oh, and thanks again to all the people that were apart of our fundraiser because our insurance didn't cover his glasses so we had to pay out of pocket. Eeeek!

Of course, when he gets the glasses, I'll post a pic ASAP.

2 comments:

  1. Oh Jaimie, I am so glad that your fundraiser was so successful. Bless your hearts...

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  2. So glad to hear that the benefit funds are still helping with all of those out-of-pocket expenses that pop up. My own son had/has strabismus and I do remember those unnerving times holding him down and waiting for what seemed like forever with a squirmy toddler.

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