Our journey through life with hemiplegic cerebral palsy and infantile spasms

Thursday, January 10, 2013

AFO and SMO update

Yesterday Karsen had an appointment with his physiatrist. If you don't know what a physiatrist is, here ya go. We've only met with his once before, which was over 6 months ago. Karsen wasn't doing much at all at that time. He wasn't rolling, he wasn't sitting, he was only breastfeeding and he still was having seizures. Our appointment yesterday went really well. He was shocked at how well Karsen is doing. With his seizure history he didn't think he would be as far as he is. We talked a bit about botox and decided that he wanted to wait a little bit more so we can do injections on both his leg and arm at the same time. No real point in doing the leg now since he isn't walking. His orthotist was also there. Here is where you'll find what an orthotist is. He checked Karsen's thumb splint, which is finally working the way we both want it too, he also check out his AFO and SMO. Holy smokes! The kid almost out grew them in less than 3 months. The cool part? The company that makes his AFO and SMO will make a whole new set if they out grow their current ones within 90 days. So, we get a new set, which hopefully will last him longer, for free. I went with the same blue camo, and blue straps since we really didn't get to enjoy the fun print on the last ones. 
With the skew of changes going on with our EI program I've been feeling thrown off my game. I'm sure many others have been as well. We have upped the anti on Karsen's therapy with his other OT and PT. We'll be going there 3 times a week. Then 2 times a week with our EI therapy. Tomorrow Karsen and I both will be taking a break since we both are sick... :-( and we will miss our sweet Mary Beth. Thankfully we get to have a make up session with her. I think in place of our session with MB tomorrow, I'm going to focus a lot on sensory play with the boys. It's easy, fun (although there is always a big mess), and doubles for a therapy tool. 

My sweet sweet little man, stop growing so fast!

1 comment:

  1. Love that sweet face!!

    - Auntie Stepahnie
    www.stephaniedbirch.com
    www.writerfreaks.blogspot.com

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