We have now hit the two week mark (and then some) of no corn or oats. I'm happy to announce Karsen is no longer screaming when he poops and is doing it every other day to every day. Who knew I would be so excited about poop. I forgot how hard cloth diapers can be, but boy am I happy he seems to feel much better. No more runny nose! It's still been very challenging for us, the quick easy meals no longer exist, and grabbing on the go is impossible. It's made my kitchen a disaster, but has made me plan a lot more ahead of time. Karsen has started to adjust, as well as Karter. We've been eating a lot of fruits and veggies, and juicing Just about anything you can imagine and Karsen is sucking them down! I think he eats better than me. :-)
Today Karsen free stood for 20 seconds. I couldn't believe it. Since this week his therapy team is on spring break I took it upon myself to do some hard work with him at home while Karter was at preschool. For 20 minutes he stood at a toy using his hand every few seconds to steady himself. I was blown away. I can tell he wants to walk so bad! I got a glimpse of the light at the end of the tunnel, and so did Karsen. He was so proud of himself. I can't wait to see him take his first true, stable steps.
Our journey through life with hemiplegic cerebral palsy and infantile spasms
Tuesday, March 26, 2013
Wednesday, March 20, 2013
First bread, then juice
My friends and family are amazing and such a huge support. We got a bread maker from a long time family friend and then yesterday one of our good friends gave us a really nice juicer! Both have already been put to good use. I seriously don't know where to begin with these generous people.
Karsen has been eating peanut butter and jelly sandwiches with out a problem, which is hard to believe since he's been such a picky eater, he's really starting to come around. Of course on our freshly made, corn free, oat free bread. This mornings juice he sucked down in a matter of minutes. I decided to throw in quite a bit of spinach, some jicama, grapes, oranges, and a few blue berries. Boy did I do a good job of making it look gross. ha.
We are most likely going to be getting chickens soon. If you didn't know, most chickens are fed corn feed, so you could see where that would be a problem since Karsen's highly allergic. I'm pretty excited, and of course Karter will probably pick out the chickens, he has one at my sisters house named McQueen. I can only imagine the names he is going to pick for ours. It will be nice to be able to give the chickens all of that pulp from the juicer I just put straight in the trash (we don't have a compost yet).
We are snuggled up indoors today, and although I've enjoyed the beautiful sunny weather, this raining snuggle day is just what I needed. The best part? Karsen's PT had to cancel today so we've had a completely relaxing day. It's been pretty nice. I'll probably yank out the sensory bins in a few in hopes to get dinner going.
Staying cozy and enjoying this down poor of a day. Feeling incredibly blessed I can even stay home to do this.
Tuesday, March 19, 2013
Looking for suggestions
We've been successfully eating "clean" for over four days now and boys has it been hard. We have cut all corn (in any form) and oat, which basically cut out all processed food. Not like we really should be eating that all anyways. A long time family friend was kind enough to give us an awesome bread make which has already been put to good use and made three loafs of bread. We've been having smoothies every morning now. Since Karsen will ALWAYS drink them I throw just about anything in them. This morning was kale, spinach, and chard with apples, strawberries, oranges, pineapple, and a little bit of greek yogurt. Karsen sucks two of them down easily. My problem? My cheap, not so good blender (which is old too so that doesn't help) doesn't blend it up very good. My oldest, Karter, and my husband literally gagged on Sunday's smoothie because it was too chunky. And Karsen was getting so mad that his drink kept getting clogged. So, it's time for an upgrade. I'm looking for suggestions. I have heard a lot about the vitamix, which of course I would hop out and buy right now, however it is quite expensive. Do I bite the bullet and get it? Or do I get a juicer? Or do I buy a more expensive blender, just not $400 worth? I haven't looked much into juicers. I would actually like to get one to make OJ, and apple juice.... but again, is that a waste of money? Should I just get a hand juicer?
Karsen has been doing pretty well with the diet change. It was hard the first day or so since he couldn't have his beloved grahm crackers but now he has no problem eating my homemade bread with pb and jelly on it. Which reminds me, I'm out of homemade jam.... looks like that's on tonight's to do list.
Therapy has been moving a long. The other day Karsen used his scrubby brush (what we use to get sensory input on his affected arm) on his arm while I sang the scrubby song. Every time I started to sing it again, he'd lift his affected arm up and start to scrub it. This is a HUGE step for him. Every now and then he gives up a glimpse of movement in that arm. I know once he's old enough to understand to use two hands it will become a lot easier for him. Walking is still a long shot away for us, but that's alright. He'll do it in his own time. Next Friday we have an appointment to try out different styles of walkers to see which on works best for him.The biggest thing Karsen has taught me? Patience, it doesn't come easy.
I've been trying to find a two seater wagon for the boys (the kind with seat belts) but a luxury item like that isn't really in the budget, so I've been on the look out on craigslist and the exchange. Plus why buy it new when you can find it gently used for much cheaper?
Thursday we have our annual assessment. I'm a little nervous about it since the six month review rocked my world emotionally. It's hard to hear all the things your little one isn't doing on target, but it's also nice to hear all the goals he has met that were set. So, I'm going in knowing my little man doesn't fit in a chart, he doesn't follow a list, he is himself. He does things his way, he does things in his own time, and does nothing but blow me away and prove many people wrong.
I am so grateful for my beautiful family God has blessed me with. I have learned so much from Karsen and I know I will continue to learn much more. He has helped our family grow and has opened our eyes to the real world. Life is not perfect, it will never be. The well manicures lawn, with the two beautiful cars parked in the garage, with the spotless house, with the laundry all done, all natural home raised/cooked meal, with the quiet, obedient playing kids, and the husband that comes home to greet his wife with a a dozen roses... that's not real, it never will be. The internet has become this great place to find unique ideas for parties, kids rooms, and so much more (you know what I'm talking about, pinterest). But it started to become a place where I didn't appreciate what I had, what God has so generously given to me. Don't get me wrong, I've gotten some great play ideas for the boys but the longer I stayed on it I would start to feel like a crappy mom not doing enough for my kids, not remodeling the house on my own, not dressing in cute trendy clothes every day rather than yoga pants. But let me tell ya, I love my yoga pants, I love my small house, I love that I am able to be home with my boys and it's time we all stop feeling inadequate for our job. God made us who we are, there were no mistakes. He knew what he was doing when he gave me Karsen. He knew I could step up to the plate, He knew I was perfect for the job, and you know what? I am!
Life is simply too short and too precious.
Live your life.
Enjoy the day.
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