Our journey through life with hemiplegic cerebral palsy and infantile spasms

Thursday, October 23, 2014

More food issues

I took Karsen to his pediatrician yesterday to figure out why he's getting sick all the time and taking forever to recover. After an hour and a half appointment and almost two hours at the lab, we've figured some of it out. Karsen's body is working on overdrive to fight off the food in his intestines that he's allergic to, so his immune system is suppressed right now. This is why he's getting sick on stop, his immune system is so weak from fighting non stop it can't even fight off a common cold. Obviously this is a big problem, with all those nasty viruses going around, it could land him in the hospital. We did more blood work to find out what food is causing the issues. We already know he can't have corn or oat, well now we've discovered he no longer can have dairy or gluten. This is not a temporary change until he can handle this food, this is a permanent life change for him. We will ever be able to have corn, oat, gluten, or dairy. Poor guy, right?! We've had to make some major changes in our house. We can't keep any of that stuff around, Karsen will throw a giant fit for cereal, crackers, cheese if he sees it but can't have it. So it's got to go. It will be good for our whole family but it's definetly going to take some getting use to for Kuper and Karter. we went over Karsen's sleep issues, we are going to try to add in a few extra vitamins that he's most likely lacking since his body is having a hard time absorbing the nutrients from most food. Our hope is its a vitamin deficiency and not seizures that's causing the bad sleep. Two day was the first day of making the food switch. Breakfast was easy, eggs and sausage with our green smoothie, lunch was a little interesting but not too far off of what he gets. Dinner is going to be more challenging. Pleasing everyone is going to be a hard task. Pray for me....lol

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