We've had a huge change happen in our house, I'm going back to work. As much as I love being home with my boys, financially it isn't an option anymore, especially if we want to be able to send our kids to a private school. I'm excited to start working again, doing one of the things I love most. (I've been doing hair for 10 years) I'm really excited to get some adult time! I've tried throwing around the idea of going back to work before but I had serious anxiety about working again. I would constantly be worrying about Karsen having a seizure while I'm gone, worrying if he isn't being engaged enough, choking on his food, or drink... there's a lot to be worried about. So, I backed out. Decided if I didn't feel right about it then God would provide, and he did.
Recently we revisited the whole subject. I decided to start looking for a nanny. Someone I would trust with my boys, someone willing to drive them to appointments, someone with experience with special needs kids, and someone willing to work with my schedule.... when I put that list together I did not trust in God, I did not think we would find someone. Well, God put me in my place, why do I not give him all my problems??? We have found a nanny! Here's why she is so perfect for the job: I've had the opportunity to get to know her over the past year and love her. She's one of Karter's preschool teachers, which means when Karsen goes to preschool she will be there (HUGE bonus). She doesn't mind driving my kids everywhere, and also doesn't mind if they are sick. As if that all weren't good enough... she has a 15 month old little brother who has down syndrome, she has lots of experience with special needs kids. I'm so excited to have her watch my boys. (let's just hope they don't like her more than me lol)
To top all of this off, I found a salon closer to home that's adorable, small, and has three amazing women working there, one of which has been a long time friend who's oldest son has the same speech therapist as Karsen. :-) I really couldn't feel any better about the whole situation.
So enough work talk, Karsen is still struggling with speech. He's doing really well with his new speech therapist. We also had a breakthrough at hydrotherapy. He was actually trying to pull his legs under him to keep him self floating with his special float suit (it's designed to help but not make him float) His OT and I couldn't almost completely let go of him.
We are dealing with major behavioral stuff. He's constantly screaming and throwing a fit, he's even resorted to hitting himself. Half the time I know why, the other half I have no clue. It breaks my heart he can't just tell me what's going on.
We are waiting for his referral to go through for a swallow study. We are pretty sure he's been aspirating his water and pretty much any juice. His oral motor delay is hands down or biggest struggle. His rash has been getting worse, which makes me the small amount of botox that was working in our favor is already wearing off. :-/ We are back in the squeaky wheel saddle of annoying doctors until we get our appointment.
We've moved the TV out of the livingroom. Karsen was constantly asking for it, he would watch it all day every day if we let him. Now he just throws a fit when we don't let him in our room.... not sure if that was a good decision. At least when we are playing it's not in his direct view. any suggestions to stop the tantrums because we wont let him watch tv?
No advice at all. lol I think you are doing so many things *right* though. His need for the TV will wear off eventually. Remember when all of you kids were little.....we didn't have a TV for years. I loved those years! Hang in there and I will see you Monday.
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