Still drooling

It's been over two weeks since the Botox. It can take up to a month to get the full affect but we should be seeing most of it now. And what do we see??? Still drooling. It dropped maybe 10% less but not nearly enough. He's still getting rashes. They are better, not down to his diaper, just remaining on his chin, neck, and a little on his chest. It's an improvement but not enough. For some reason I knew this was going to happen. Maybe I was being pessimistic about, but everything we had tried hadn't worked. So why would this. We have an appointment with his pediatrician in January, so we'll address this whole issue then.

We also had two appointments in Palo Alto last week. One with his neuro and one with his eye doc. He first was with his neuro, who was shocked at how good Karsen's gait was. She expected him to have more of a limp, and swing his leg around more. We talked about Botox later on down the road for his arm, and also constraint therapy. We went over his EEG again, and what to look out for in seizures since they will most likely return. All in all, it was a good appointment even the that ugly work came in.

We then had his ophthalmology appointment, pretty routine. His last appointment his eyes were doing so good she had mentioned not needing glasses soon. I came to the appointment knowing that wouldn't happen since his right eye seemed to be worse again. This puzzled his doctor. She had asked us if there was any. Recent seizure activity. Odd she asked since we still aren't sure. She's worried something might be happening. So now we are back o patching and wearing the glasses 24/7, which we are use to.

I had been talking to his OT, Mary Beth, about all that was going on and had been trying to figure out what we can do for Karsen for his oral motor delay. Something just isn't right, he shouldn't be struggling as much as he is in this department since everything else is moving along. The fear of seizures pops in even more a this point. So, we are in a wait and see process now. I have a lot to discuss with his pediatrician, and also have an email in to his neurologist (I wish that appointment was second so I could have just talked to her in person about all these problems). Karsen, Karter and I have all been fighting a nasty cold since Thursday, just in time to relax for our Christmas break, ha. All we can do is hope and pray. I know God has a plan through all of this.

Sweetest view from my kitchen the other day. My three favorite people in the whole world. I'm am certainly blessed.