Our journey through life with hemiplegic cerebral palsy and infantile spasms

Monday, May 20, 2013

Ready for summer

Wowza! It's been a while since my last post. I have not been the best blogger. To my defense, life has just been flat out busy. After Karsen and Karter swapping for a week straight of who was going to throw up for the night and getting back into the swing of things I've been a little behind. In fact, cloth diapers have been put on hold for over a week.... :-/ Sometimes you just a need a break. On that note, I am very much so looking forward to summer. We have decided to take a few week breaks here and there from therapy. I think it's important for Karsen to still enjoy being a toddler and also feel those breaks have helped him sky rocket when he starts back up again. 
Yesterday, I was talking to my husband about how I really just need to step back and look at how far he has come. I mean common, he's eating normal food!!!! That's a huge accomplishment. I'm not as worried and stressed about him chocking anymore and he handles drinking out of straws like a champ. I'm still avoiding the super hard stuff (carrots, apples, that sort of thing), I'm just not really ready to step back into hover and swipe the food out mom. Karsen has started to acknowledge he has a left arm now. If you ask him to blow a kiss with lefty he'll do it. I was shocked. He also will raise both hands up in the air if you prompt him too. We have seen more and more signing and more understanding in this kid in the last month than I thought we'd see. Here are his current signs: all done, more, yes, hi, eat and please. A month ago it was pretty much just yes. His understand is so clear. I was putting his rash cream on his chest and chin the other night and said "Look up." and he immediately did. He still throws the biggest fits but I'm starting to see that some of it is just being a toddler and me telling him no is not acceptable to him. ha
We are still not independently walking, but he's doing so good. He'll walk if I hold his hand, and he surprisingly loves his walker. It's absolutely a confidence thing now. The minute I let go of his hand, he sits down to butt scoot. Little stinker. He's one smart cookie.
Two more days of preschool for Karter and it will be official summer for us over here. I'm really excited to take the boys to the water parks once they open. Let the summer fun begin!




1 comment:

  1. I was just thinking this morning that I hadn't read anything from you in a long time and I was missing you. Glad to see you back!

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