Our journey through life with hemiplegic cerebral palsy and infantile spasms

Saturday, May 26, 2012

CP- what I want you to know

An amazing video done by a fellow CP mommy. Had to share it, it's so beautifully written.

Yes, I WIN!!!!

Since Karter and Karsen were both born, Kuper was constantly trying to get the boys to say Dada first and I well... you know what I was doing. Saying "mama" every chance I could get. Karsen, in the last month, has just exploded verbally and been making all sorts of different sounds. I love hearing him babble to himself after a good nap. After a long exhausting session of PT, Karsen was telling me all about his day..... all sorts of sounds. Then, that cute little sound that brought an instant smile to my face "ma ma ma ma" YES!!! Now, I of course, had to tell Kuper first thing because he said a word (riiight! Not to rub it in at all, No! Never! ;-) Karsen wasn't saying  Mama on purpose obviously, but just like any other kid out there this is how it all starts! So excited to hear that little sound come out of his mouth! That's right my little man, ma ma. You say it all you want! I win babe! ;-) Two for two.


Friday, May 25, 2012

So proud!!!

Today Karsen had his usual Friday physical therapy. We've been working on him weight baring on both arms. This quite hard on his left side and some what hard on his right. Today, the first thing Mary Beth did was put him on his shin, legs tucked under so he can try to weight bare just a little. What does he do?! BAM! Fully extended, both arms weight baring!!!! We were both so blown away. I almost started crying, not hard to do these days, who am I kidding... not hard to do in general. For those of you out there with a baby that is (I hate to say this word because no kid is really truly) normal; treasure every moment, every milestone, even the little ones I, myself, took for granted with Karter. I know weight baring for a normal baby is still exciting but I find a serious amount of exhilaration from my little mans accomplishments. I'm so proud of my little man! Karsen, I know you are going to take on every obstetrical head on and overcome every hardship! I love you more than words can express!
I'm one beaming proud mama!
As you can tell, physical therapy is hard work... no smiling picture here but such a huge accomplishment!