Waiting room

We were squeezed into an appointment today with Karsen's regular doctor, since his neuro is such a drive, to check out what's going on with him. From one appointment straight over to the lab to get blood work done. My day of zero appointments quickly got busy with many. But this little man doesn't let anything get him down. While waiting in the waiting room for someone to call us back for the blood draw, Karsen decided to chat me up for a little. 

Enjoy!

*Proud mommy alert*

Not quite himself

Ever since Karsen started the new drugs, he's just not seems like himself. It's becoming more obvious to me. I was hoping it was temporary but it hasn't gone away. He's been on the meds for three weeks now. He doesn't have much drive to play, doesn't seem interested in any of his toys, and doesn't smile or babble nearly as much. So, he's been seizure free but is this the price we pay? It breaks my heart to see him this way. No child should have to live their live in a haze of drugs. We have an appointment on the 3rd. I'm so impatient I am going to send our neuro an email right after I post this. I just have that gut feeling something is not right. On top of this, Karsen has had a few random days of scream crying, where he just seems miserable. I'm wondering if it is a migraine or if it's something with the seizures. I hate having all these unanswered questions. Lets hope we get some answers soon. Please pray for my little man. Off I go to email the neuro.

Where to begin?

As I sit here thinking about yesterday, I can't help but cry (the good cry) because of how much people have done for us. From family, to new friends, old friends, to people we don't even know! It was such a beautiful, perfect day. I was overwhelmed with the amount of support we received from so many people. We had a huge turn out! I think it was more than any of us expected. The food was AMAZING!!!! In fact, it was so good, some people paid twice to get a second round! Huge thanks to Jake, my awesome brother in law. We served over 250 people! The silent auction was a hit, and a huge success! The bands were just perfect for the gorgeous view. I couldn't have asked for anything better. I'm not quite sure what I am going to do to thank my parents for putting this one (especially my dad) but I need to think of something good. I can't wait until we are in a situation to be able to pay it forward to someone else in need some day. Here's some pictures, Enjoy.

 One of the two amazing bands

 Shake your groove thing

All snuggled up with nana after a long day. He did SO good!

There are so many amazing people to thank for so many different things. Thank you everyone for the support and prayers. We are so blessed to have you all in our lives.